Money raised to help Sophie
Charity Ale from The Chiltern Brewery Raises £500 For #SupportSophieEdes who lives with Rett Syndrome
The Chiltern Brewery team are delighted to have raised helpful funds from sales of their Charity Beer and a special raffle to win a Head Brewer’s Hamper in the Brewery Shop to help Sophie Edes reach her target for life-changing eye gaze equipment.
The granddaughter of a much-loved now retired employee at The Chiltern Brewery, Sophie lives with the rare medical condition Rett Syndrome, meaning that she will be unlikely to ever speak or walk. Head Brewer Tom Jenkinson and his team decided to make her Just Giving appeal for this specialist equipment the focus of their 2018 charity ale and presented a cheque for £500 to Sophie’s mother Liz on Friday 20th April at the Brewery in Terrick near Wendover.
Liz Edes also picked the Head Brewer’s Hamper raffle winner from the hat, and the lucky recipient David Elliott gets a selection of 6 beers and foods including chutney, pickled onions, mustard, marmalade & malt fudge. The raffle raised £132 towards the total.
“What a great cause for our charity ale; we were so pleased to be able to help with sales from our draught beer Pride of Bucks & Berks and a raffle in the shop to win one of our lovely Head Brewer’s Hampers. We want to thank all our customers who have been so generous and everyone who has helped the appeal including a special mention for landlord Andy from The New Zealand pub in Buckingham Road, Aylesbury who donated further money from his sales of our beer. The local press coverage has been superb too – very supportive in spreading awareness” said Tom.
If you didn’t get the chance to buy the charity ale or enter the raffle you can still donate towards Sophie’s appeal at https://www.justgiving.com/crowdfunding/sophieedes
Rett Syndrome
Rett syndrome is a rare neurological disorder affecting mainly females and very few males. It is present from conception and usually remains undetected until major regression occurs at around one year of age, when children may lose acquired skills and become withdrawn.There is very little awareness of this disease and it is often only diagnosed in early childhood. Associated organisations are http://www.rettuk.org/ and https://www.reverserett.org.uk/